Survey Data
IV. Health Policy Reference Desk >> Health Policy Data >> Survey Data (last updated 12.19.18)
Topic Outline
Health Facilities
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Guide to HHS Surveys and Data Resources
Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services.
- Area Resource File (ARF). Health Resources and Services Administration (HRSA). ARF contains information on health facilities, health professions, measures of resource scarcity, health status, economic activity, health training programs, and socioeconomic and environmental characteristics. In addition, the basic file contains geographic codes and descriptors which enable it to be linked to many other files and to aggregate counties into various geographic groupings.
- Behavioral Risk Factor Surveillance System (BRFSS). Centers for Disease Control and Prevention (CDC). BRFSS is a state-based, on-going telephone health survey system, tracking health conditions and risk behaviors in the United States yearly since 1984.
- CMS Administrative Datasets — Research Data Assistance Center (RESDAC). Centers for Medicare and Medicaid Services (CMS). CMS Administrative data is accessible through the Research Data Assistance Center (ResDAC). Datasets include Medicare and Medicaid Beneficiary Data, and Medicare Part D Data. A complete list of data sets is available at: http://www.resdac.org/Tools/TBs/TN_015_CMS%20Data%20Availability_508.pdf
- Health and Retirement Study (HRS). National Institutes of Health (NIH). HRS is a longitudinal panel study that surveys a representative sample of more than 26,000 Americans over the age of 50 every two years. The HRS explores the changes in labor force participation and the health transitions that individuals undergo toward the end of their work lives and in the years that follow. The study has collected information about income, work, assets, pension plans, health insurance, disability, physical health and functioning, cognitive functioning, and health care expenditures.
- Healthcare Cost and Utilization Project HCUP). Agency for Healthcare Research and Quality (AHRQ). HCUP is a family of health care databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). HCUP databases bring together the data collection efforts of State data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of patient-level health care data. HCUP includes the largest collection of longitudinal hospital care data in the United States, with all-payer, encounter-level information beginning in 1988. These databases enable research on a broad range of health policy issues, including cost and quality of health services, medical practice patterns, access to health care programs, and outcomes of treatments at the national, State, and local market levels.
- Home Health Outcome and Assessment Information Set (OASIS). Centers for Medicare and Medicaid Services (CMS). OASIS contains data items that were developed for measuring patient outcomes for the purpose of performance improvement in home health care. OASIS data items address socio-demographic, environmental, support system, health status, functional status, and health service utilization characteristics of the patient.
- Medical Expenditure Panel Survey (MEPS). Agency for Healthcare Research and Quality (AHRQ). MEPS is a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage. MEPS data cover health care use and spending, insurance coverage, and accessibility of care.
- Medicare Current Beneficiary Survey (MCBS). Centers for Medicare and Medicaid Services (CMS). MCBS data contain survey responses and CMS administrative data for individuals participating in the MCBS. MCBS is a multipurpose survey of a nationally representative sample of Medicare beneficiaries. It is a comprehensive source of information on socioeconomic and demographic characteristics, health status and functioning, health care use and expenditures, and health insurance coverage of the entire Medicare population including the aged, disabled, and institutionalized Medicare beneficiaries.
- National Children’s Study (NCS). National Institutes of Health (NIH). NCS will examine the effects of the environment, as broadly defined to include factors such as air, water, diet, sound, family dynamics, community and cultural influences, and genetics on the growth, development, and health of children across the United States, following them from before birth until age 21 years. The goal of the Study is to improve the health and well-being of children and contribute to understanding the role various factors have on health and disease. Findings from the Study will be made available as the research progresses, making potential benefits known to the public as soon as possible.
- National Ambulatory Medical Care Survey (NHCS-NAMCS). Centers for Disease Control and Prevention (CDC). NAMCS is a national survey designed to meet the need for objective, reliable information about the provision and use of ambulatory medical care services in the United States. Findings are based on a sample of visits to non-federal employed office-based physicians who are primarily engaged in direct patient care.
- National Health Interview Survey (NHIS). Centers for Disease Control and Prevention (CDC). NHIS has monitored the health of the nation since 1957. NHIS data on a broad range of health topics are collected through personal household interviews. For over 50 years, the U.S. Census Bureau has been the data collection agent for the National Health Interview Survey. Survey results have been instrumental in providing data to track health status, health care access, and progress toward achieving national health objectives.
- National Health and Nutrition Examination Survey (NHANES). Centers for Disease Control and Prevention (CDC). NHANES is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey is unique in that it combines interviews and physical examinations.
- National Home and Hospice Care Survey (NHCS-NHHCS). Centers for Disease Control and Prevention (CDC). NHHCS is one in a continuing series of nationally representative sample surveys of U.S. home health and hospice agencies. It is designed to provide descriptive information on home health and hospice agencies, their staffs, their services, and their patients.
- National Hospital Ambulatory Medical Care Survey (NHCS-NHAMCS). Centers for Disease Control and Prevention (CDC). NHAMCS is designed to collect data on the utilization and provision of ambulatory care services in hospital emergency and outpatient departments. Findings are based on a national sample of visits to the emergency departments and outpatient departments of noninstitutional general and short-stay hospitals.
- National Hospital Care Survey (NHCS). Centers for Disease Control and Prevention (CDC). NHCS is a new survey that integrates inpatient data formerly collected by the NHDS with the emergency department (ED), outpatient department (OPD), and ambulatory surgery center (ASC) data collected by the National Hospital Ambulatory Medical Care Survey (NHAMCS). The integration of these two surveys along with the collection of personal identifiers (protected health information) will allow the linking of care provided to the same patient in the ED, OPD, ASC, and inpatient departments. It will also be possible to link the survey data to the National Death Index and Medicaid and Medicare data to obtain a more complete picture of patient care.
- National Hospital Discharge Survey (NHCS-NHDS). Centers for Disease Control and Prevention (CDC). NHDS, which was conducted annually from 1965-2010, was a national probability survey designed to meet the need for information on characteristics of inpatients discharged from non-Federal short-stay hospitals in the United States. Data from the NHDS are available annually and are used to examine important topics of interest in public health and for a variety of activities by governmental, scientific, academic, and commercial institutions.
- National Immunization Survey (NIS). Centers for Disease Control and Prevention (CDC). NIS is a survey to children’s immunization providers to monitor childhood immunization coverage.
- National Nursing Home Survey (NHCS-NNHS). Centers for Disease Control and Prevention (CDC). NNHS is a continuing series of national sample surveys of nursing homes, their residents, and their staff. Although each of these surveys emphasized different topics, they all provided some common basic information about nursing homes, their residents, and their staff. All nursing homes included in this survey had at least three beds and were either certified (by Medicare or Medicaid) or had a state license to operate as a nursing home.
- National Survey of Children’s Health (SLAITS-NSCH). Centers for Disease Control and Prevention (CDC). SLAITS-NSCH sponsored by the Maternal and Child Health Bureau of the Health Resources and Services Administration, examines the physical and emotional health of children ages 0-17 years of age. Special emphasis is placed on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods.
- National Survey of Family Growth (NSFG). Centers for Disease Control and Prevention (CDC).NSFG gathers information on family life, marriage and divorce, pregnancy, infertility, use of contraception, and men’s and women’s health. The survey results are used by the U.S. Department of Health and Human Services and others to plan health services and health education programs, and to do statistical studies of families, fertility, and health.
- National Survey of Residential Care Facilities (NHCS-NSRCF). Centers for Disease Control and Prevention (CDC). NSRCF is a survey of residential care providers. Included are residential care facilities; assisted living residences; board and care homes; congregate care; enriched housing programs; homes for the aged; personal care homes; and shared housing establishments that are licensed, registered, listed, certified, or otherwise regulated by a state.
- National Survey on Drug Use and Health (NSDUH). Substance Abuse and Mental Health Services Administration (SAMHSA). NSDUH is an annual survey sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA). The survey is the primary source of information on the use of illicit drugs, alcohol, and tobacco in the civilian, noninstitutionalized population of the United States aged 12 years old or older.
- National Vital Statistics System (NVSS). Centers for Disease Control and Prevention (CDC). NVSS is the oldest and most successful example of inter-governmental data sharing in Public Health and the shared relationships, standards, and procedures form the mechanism by which NCHS collects and disseminates the Nation’s official vital statistics. These data are provided through contracts between NCHS and vital registration systems operated in the various jurisdictions legally responsible for the registration of vital events — births, deaths, marriages, divorces, and fetal deaths.
- State and Local Area Integrated Telephone Survey (SLAITS). Centers for Disease Control and Prevention (CDC). SLAITS collects important health care data at State and local levels. It supplements current national data collection strategies by providing in-depth State and local area data to meet various program and policy needs in an ever-changing health care system. SLAITS currently supports various surveys, including the National Survey of Children’s Health and National Survey of Children with Special Health Care Needs.
- Youth Risk Behavior Surveillance System (YRBSS). Centers for Disease Control and Prevention (CDC). YRBSS monitors six types of health-risk behaviors that contribute to the leading causes of death and disability among youth and adults.
Other Resources
From Medstat, Web-enabled decision support tool linked to a comprehensive, integrated warehouse of medical claims and encounter data, pharmaceutical drug utilization, eligibility information, and performance measures.
From AMA, this is an on-line “doctor finder” providing information on virtually every licensed physician in the US.
Ambulatory Care Experiences Survey
Overview, how to use, etc.
Ambulatory Care, Hospitalization, and Mortality Data
Links to HCUPS, MEPS, NHDS, etc.
The American Hospital Directory provides on-line data for over 6,000 hospitals, derived from MedPAR and OPPS (Medicare claims data), hospital cost reports, and other files from Centers for Medicare and Medicaid Services.
Benefit Design Modeler for Employers
Modeling tool — Medstat Modeler® — allows you to confidently make benefit design decisions specific to the appropriateness of your employee base. The basis for the model is data from the Medstat proprietary MarketScan® Database, a market-leading benchmarking and research database. Using actual claims cost and use experience, industry group, enrollee age/gender, and geographic distribution, we tailor the modeling results to your specific healthcare experience.
Book: The Compendium of Health Statistics, 18th Edition, 2007
(Radcliffe Publishing) By Emma Hawe The OHE Compendium of Health Statistics is the one-stop statistical source specially designed for easy use by anyone interested in the UK health care sector and the NHS. It contains over 300 simple, easy-to-read tables and charts and provides a wide range of information on UK health and health care, demography, expenditure and major illness in a single volume. It also includes long time series and comparisons with other economically developed nations. The UK data are broken down into England, Northern Ireland, Scotland and Wales and contain annual figures from as far back as 1949 (the first full year of the NHS). ISPOR member price: £319.20 (a 20% savings) ISBN#9781846192128 Enter Code: ISPOR To order, please email: www.radcliffe-oxford.com
Bureau of Primary Health Care (US)
A core set of information appropriate for monitoring and evaluating health center performance and reporting on trends is collected through UDS. UDS collects basic demographic information on populations served, such as race/ethnicity and insurance status of patients, birth outcomes, etc. Reported by the following groups: Community Health Center; Migrant Health Center; Health Care for the Homeless; Public Housing Primary Care;and any section 330 funded Health Center
Downloadable files. Presents data on cancer incidence, mortality, survival, cancer risk factors, and annual estimates of expected new cases and deaths. Special section on Cancer-related Pain
CancerMPact® is the global oncology resource from MattsonJack DaVinci to provide you with all aspects of strategic planning, market analysis, and identification of commercial opportunities. It contains integrated modules – Patient Metrics, Emerging Technologies, Treatment Architecture, and Treatment Evolution – and is available for the U.S., EU, and Japan.
CancerNFluence® goes beyond international and national-level thought leaders to identify physicians wielding significant influence at the local and regional levels, where the larger volume of cancer patients are treated. It helps you create a competitive advantage by incorporating publication history, peer nominations, and competitive data that is powerful, easy-to-use, and immediately accessible online. From MattsonJack.
Accessed through ISPOR website. CaPSURE (Cancer of the Prostate Strategic Urologic Research Endeavor)is a longitudinal observational study of prostate cancer patients nationwide.
CareScience Client Patient Database
Noe a part of Premier Healthcare Alliance. The database contains patient level UB92 data with detailed resources that encompass all billable items including detailed pharmacy utilization. This database also contains detailed patient flow through the hospital via the storage of detailed ADT (Admission, Discharge and Transfer) information. The database also has been risk adjusted using the CareScience algorithms that provide the following: – LOS Outcome deviations – Mortality Outcome deviations – Complication assignment and outcome deviations – Morbidity assignment and outcome deviations – Cost and Charge Outcome deviations
GREAT SITE! WONDER provides a single point of access to a wide variety of reports and numeric public health data. Wide-ranging OnLine Data for Epidemiologic Research — an easy-to-use, menu-driven system.
Links to: *Data on the cost of medical goods and services. *Data used to calculate ambulatory care, hospitalization, and mortality rates. *Incidence and prevalence of diseases. *Health-Related Quality of Life (HRQL). *Sites that provide access to multiple datasets. *Population Data (US Bureau of the Census)
Census Data for 2000, Population, Income, Race data
Click here and download the pdf file.
Center for Medicare and Medicaid Services Data Compendium
Want to know the cost of a particular laboratory test? Want to know what Medicare pays for provider visits (a good proxy for the overall cost of an ambulatory care visit)? This site is nightmarish, so be patient. Gives cost of diseases, incidences, etc. but requires managing ZIP files, etc.
Comprehensive online source for information about the Continuing Medical Education (CME) events in USA. It features extensive chronological listings of future medical meetings so that you can make informed choices within a selective time period and in his/her specialty and areas of interest.Each listing contains the sponsoring organization, the topic or title of the meeting, contact numbers for further information and registration opportunities. Also a direct link to the CME page of the sponsoring organization is given.
Cochrane Collaboration
Cochrane Database of Systematic Reviews (COCH)
Essential site for any therapeutic area you are working on. The Cochrane Database of Systematic Reviews (COCH) includes the full text of the regularly updated systematic reviews of the effects of healthcare prepared by The Cochrane Collaboration. The reviews are presented in two types: (1) Complete reviews – Regularly updated Cochrane Reviews, prepared and maintained by Collaborative Review Groups;(2)Protocols – Protocols for reviews currently being prepared. Protocols are the background, objectives and methods of reviews in preparation.
Contains high-quality, independent evidence to inform healthcare decision-making. It includes reliable evidence from Cochrane and other systematic reviews, clinical trials, and more. Cochrane reviews bring you the combined results of the world’s best medical research studies, and are recognised as the gold standard in evidence-based health care.
3,082 reports of health status indicators, one for each county in the nation. (Note: Data retired as of October 11, 2002)
Community Tracking Study – Center for Studying Health System Change
Community Reports provide information and insights about developments in the 12 communities that HSC is studying intensively over time to better understand the changing health system and variations across markets. The Center for Studying Health System Change is a nonpartisan research organization and “seeks to provide objective, incisive analyses that lead to sound policy and management decisions, with the ultimate goal of improving the health of the American public.
The Comorbidity Database™ is designed to help clients make strategic decisions based on an in-depth understanding of the importance of mutually exclusive and overlapping conditions, expanding the potential of pharmaceutical product development. It consists of two modules: Comorbidity Database™ – CNS 2.0, which focuses on mental health disorders, and Comorbidity Database™ – Med 2.0, which features a broad range of medical diagnosis and risk factors. From MattsonJack.
Consumer Expenditure Survey – Bureau of Labor Statistics
Details of consumer health care expenditures
CPI database, inflation calculator, etc.
Cost Effectiveness Analysis (CEA) Registry
Provides public electronic access to a comprehensive database of cost-effectiveness ratios in the published literature. Its goals are to find opportunities for targeting resources to save lives and improve health and to move towards standardization of cost-effectiveness methodology in the field.
Information on the threshold values used in CHOICE analyses for the relative CE of an intervention in current international dollars of 2000 for 14 countries. Following the recommendations of the Commission on Macroeconomics and Health, CHOICE uses gross domestic product (GDP) as a readily available indicator to derive the following three categories of cost-effectiveness: Highly cost-effective (less than GDP per capita); Cost-effective (between one and three times GDP per capita); and Not cost-effective (more than three times GDP per capita)
Current Population Survey – U.S. Census Bureau
Annual Demographic Survey (March CPS Supplement) includes health insurance coverage.
Dartmouth Atlas of Health Care
“The Atlas project brings together researchers in diverse disciplines – including epidemiology, economics, and statistics – and focuses on the accurate description of how medical resources are distributed and used in the United States.
Investigative data analysis and decision support system, which runs on Microsoft® Windows workstations and servers, used to manage and analyze large volumes of detailed health data.
Data User’s Reference Guide* – Centers for Medicare & Medicaid Services (CMS)
The purpose of the Data Users Reference Guide is to introduce health care data users to the Medicare and Medicaid program data maintained by CMS.” Details of raw data files, intended for use by researchers and analysts.
Data/Trends from Managed Care Digest
Very interesting, rich site: Click on the different tabs for access to market overview slides by therapeutic area, HMO industry overview, prescription drug costs, etc.
Diabetes Health Economics Resources
Compiled by Thomas Songer, University of Pittsburg. The compilations of papers, cost estimates, and studies vary in their timeliness.
Directory of Data Resources* – Department of Health and Human Services
A compilation of information about virtually all major data collection systems sponsored by the U.S. Department of Health and Human Services
Directory of Physician Groups & Networks
Online directory of IPAs, medical group practices, PHOs, practice management companies and management service organizations. Official directory of the IPA Association of America, published by Dorland Healthcare Information.
Discussion Lists on Evidence Based Medicine: How to join
WWW directory page on Evidence-based Health related discussion lists. Helps the busy professional learn how to sign up for the proliferation of email discussion lists. Each entry has the name of the list, the joining instructions and a description of its purpose together with any entry criteria.
Disease & Therapy Review (DTR) Database
Disease & Therapy Review is meant to be an accurate and efficient executive synopsis of the indications that IPD users look up most frequently. Each report includes epidemiology from the IPD (Incidence and Prevalence Database), treatment data and charts, market data and drug cost when available. The reports are collaboration between our epidemiological specialists and senior market research analysts who each have over 15 years of experience. Disease & Therapy Review will include 85-100 reports by October 2007. From TDR.
Disease-specific national and regional benchmarks of total resource utilization across the continuum of patient care, costs, units of use and services utilized. Contains de-identified? longitudinal, patient-level medical and pharmacy claims data gathered from more than 66 healthcare plans across the United States, and comprising data on more than 50 million unique participants.
The Emergency Room Database provides the top drugs prescribed, diagnostics provided, providers seen, visit characteristics, payment source and more for over 2,000 diseases. From TDR.
Epi Database® is the premier online database that provides well-researched, documented, and comprehensive epidemiology. With more than 190 indications, it covers France, Germany, Italy, Spain, the United Kingdom, Japan, and the United States. In-depth analyses are projected through 2025, making it the trusted source of epidemiology estimates for major product decisions. From MattsonJack.
Epi Database – BRIC is an online database containing the epidemiological profiles of approximately 85 indications in Brazil, Russia, India, and China. It is designed to provide easy and rapid data access, manipulation, and export, and it contains epidemiological estimates from 1995 through 2025. From MattsonJack
TrialStat’s ESRNexus (electronic systematic review nexus), a publicly searchable online coded reference library. ESRNexus is designed to facilitate and promote the reuse of data that has been manually extracted from reference materials such as journal articles during the conduct of systematic reviews that have used TrialStat’s SRS tool. References in the database are searchable in a manner similar to the United States National Library of Medicine’s PubMed database, but in addition to standard fields, ESRNexus references also contain coded fields for all of the data to help improve the precision of searches. ESRNexus represents a significant collaborative undertaking by the research community to build the world’s most comprehensive library of summarized reference material in the areas of human medicine, pharmacoeconomics, social and demographic research and veterinary medicine. The ESRNexus Library contains over 17 Million References and Clinical Trial Listings with contributions from the National Library of Medicine and participants throughout the research community.
From United BioSource Corp. EvidenceHub® is UBC’s online relational database containing comprehensive data compiled from systematic reviews of published medical literature from over 7,000 studies and 6 million patients. Powered by UBC’s proprietary data warehouse MetaHub®, EvidenceHub® is an online application that provides access to data from customized client projects, as well as standard disease or therapeutic-specific data sets. EvidenceHub® allows researchers to access and organize vast amounts of data that have been systematically reviewed. The database can be leveraged to gain insight to specified medical topics by drilling down into specific areas of interest, filtering, sorting, reporting, and exporting data into customizable formats.
Evidence-based Medicine (EBM) Guidelines
Unique, concise and easy-to-use collection of clinical guidelines for primary care combined with the best available evidence. Continuously updated EBM Guidelines follows the latest developments in clinical medicine and brings evidence into practice. Searchable database
Evidence-based Medicine: meta site
WOW and Great Site! Comprehensive site with links to resources for evidence-based medicine. Click on L”ibrary”: Many links to articles on how to evaluate. “Organizations” link is full of great information. “Questionnaires” link provides evidence-based medicine evaluation tools.
Expansion of Quality of Care Measures (Q-SPAN)
AHRQ Project designed to strengthen the science base of quality measurement while expanding the scope and availability of validated, ready-to-use measures. Q-SPAN builds on past work in quality measurement by public and private organizations through eight cooperative agreements to develop and test additional clinical performance measures for specific conditions, patient populations, and health care settings.
Expert Health Data Programming, Inc.
Provides Vitalnet software for analyzing and disseminating health statistics/data sets to run on desktop or web browser. Makes tables, charts, maps, stats.
More than 50 million members, rich and diverse database on drug usage and demographics, and a history of partnering with pharmaceutical companies.
QuickStats (from CDC/NCHS) ranging from Alzheimers to Work Loss Days. Key state data available too. Get email updates on relevant areas. Linkds to NHANES, NCHS, NHIS, NIS, LSOA, NSFG, SLAITS
Gateway to statistics from over 100 agencies. Sort by health and get links to AHRQ, CDC, CMS, etc. etc.
CouponChief.com. Ultimate Guide to Financial Resources for Cancer Patients
Forecast Architect® is a proprietary Excel-based forecasting tool that allows clients to spend more time on the underlying forecast drivers and assumptions and less time on model construction and mathematical calculations. It offers unsurpassed flexibility to add events to forecasts, turn events on and off, and create scenarios that enable clients to ascertain the impact of certain market events or competitive actions on a forecast and weigh the consequences of different courses of action. From MattsonJack.
Download tables. CAUTION: discounting error in Tables 9.4 and 9.5. The corrected tables can be found here.: http://www.pceo.org/about.html
HealthEconomics.nl is an open collaboration and aims to provide a free, comprehensible and open knowledgebase for Health Economics and Pharmacoeconomics. Its main purpose is to provide background information on economic evaluations of healthcare interventions (such as cost-effectiveness analysis and cost-utility analysis) to policy- and decision makers, students, researchers and healthcare workers in the field of healthcare, as well as the general public.
Hayes, Inc.: Evidence-based health technology assessment research
Hayes, Inc. provides evidence-based health technology assessments, education and consulting services. Hayes is an independent health technology research and consulting company whose core business is performing unbiased, evidence-based health technology assessments of the safety and efficacy of new, emerging and controversial health technologies. Hayes evaluates the impact of these technologies on healthcare quality, utilization and cost. Sample reports are available for free at www.hayesinc.com.
Employer data on absenteeism, productivity, WC, STD, LTD, healthcare costs, payroll, etc. Excellent data source for conducting assessment of indirect costs or employer based demonstration work
HCMS Human Capital Management Services
Health information service business; has database with Payroll Data; Attendance, Absence and Disability Data; Workers Compensation Data; Health Plan Data, including Drug Safety Data, when available Individual Health & Productivity Data. Also provides consulting services to employers not large enough for database services, and includes technical assistance in health benefits design and implementation, and human capital risk management training.
This will take you directly to the data you want.
HCUPnet– Healthcare Cost and Utilization Project – Agency for Healthcare Research and Quality (AHRQ)
national statistics and trends and selected State statistics about hospital stays.
The Euro Surgical and Euro Diagnostic Database contain 460 procedure volumes available for the Euro Big 5 countries (France, Germany, Italy, Spain & UK). Specialties include Cardio/Peripheral Vascular, ENT, General Surgery, Neuro/Spine, Ob/Gyn, Ophtamology, Orthopedics, Plastic Surgery, Thoracic Surgery & Urology. Easy to use: Excel format and ICD-9 codes and definitions are used as reference for standardizing the databases. Databases are yearly updated. Customized data research is available on request. From TforG Direct
Health Care Demographics Database is available for 26 countries in EMEA and BRIC. Includes HC Statistics on country level (# hospitals, # acute beds, OR Data, ER Data, ICU Data, GDP, etc). Statistics are delivered with a powerpoint presentation “Country Context” which provides information on the Economic profile, Health Care Systems, Purchasing Decision Unit & Market Landscape. From TforG Direct
One person operation providing database acquisition services among US claims database, EMRs, hospital detail data and data from Europe
Monthly update of medical care inflation. Use for pricing policy, negotiating contracts, monitoring trends, forecasting
Health Research Data for the Real World: the MarketScan Databases
Medstat white paper; click on this link to receive a copy
Searchable database of information about research datasets and instruments/indices. Includes description of and links to resources. Very useful finding aid.
Selected HSR Web Sites – see especially Health Policy and Economics and also Data Sets and Data Sources
Health Systems in Transition (HiT) profiles
HiT profiles seek to provide relevant information to support policy-makers and analysts in the development of health systems in Europe. They are building blocks that can be used: * to learn in detail about different approaches to the organization, financing and delivery of health services and the role of the main actors in health systems;* to describe the institutional framework, the process, content and implementation of health care reform programmes; * to highlight challenges and areas that require more in-depth analysis; and * to provide a tool for the dissemination of information on health systems and the exchange of experiences of reform strategies between policy-makers and analysts in different countries.
Health, United States, 2005 with Chartbook on Trends in Health
From CDC, NCHS, and HHS, contains tables on health. 2006 coming soon.
Trends in various health measures from CDC, NCHS, HHS
Healthcare Cost and Utilization Project, 1988-1994
Download the data! Both databases contain patient-level information for inpatient hospital stays using national sample of about 900 hospitals. The State Inpatient Database (SID) covers inpatient care in community hospitals in 12 States that represent nearly half of all U.S. hospital discharges.
Healthcare Data Warehousing and Clinical Intelligence
Recombinant builds reliable data warehouses and reporting systems that integrate the complex clinical concepts of evidence-based medicine to transform healthcare data into meaningful, actionable views, including views for C-level executives who need metrics to support P4P performance, board-level reports and Joint Commission accreditation
Healthy People 2000 (National Center for Health Statistics)
Downloadable file includes 26 objectives based on mortality data. State-level mortality for five population subgroups; Numbers of deaths. Data are also presented for HIV-related mortality.
Healthy People 2010 challenges individuals, communities, and professionals, indeed all of us to take specific steps to ensure that good health, as well as long life, are enjoyed by all. This includes leading indicators, guidelines, etc.
HEED – the Health Economic Evaluations Database
Contains information on studies of cost-effectiveness and other forms of economic evaluation of medicines and other treatments and medical interventions. HEED currently contains 34,000 references, is updated monthly (approximately 300 references being added each month)
HHS Measure Inventory is an inventory of the measures that are currently being used by the Divisions in HHS for quality measurement, improvement, and reporting. The Department’s goal is to further advance collaboration among members of the quality community and to advance the effective use and harmonization of quality of care measures. This is the first time a comprehensive list of quality measures used by the Department has been posted in a single location.
From Thomson Medstat provides a trusted single source point of reference to easily see which hospitals in an area perform best on key NQF-endorsed measures and determine how local hospitals compare on key effectiveness and efficiency measures.
Hospital Inpatient Profiles (HIP) Database
he Hospital Inpatient Profiles (HIP) provides the top 6 related diseases and procedures, payment source, discharge status and more for over 7,100 diseases and procedures. From TDR.
Hospital Outpatient Profiles (HOP) Database
The Hospital Outpatient Profiles (HOP) provides top drugs prescribed, diagnostics provided, providers seen, visit characteristics, payment source, disposition, and more for over 2,400 diseases. From TDR.
HospitalBenchmarks.com (Part of Ingenix)
View and print reports based on your specific requirements. With HospitalBenchmarks.com you have the ability to search on hospital name, hospital provider number, state, city, zip code, or a combination of any of these terms
Abacus International launched this online database, which contains a summary of the clinical and cost effectiveness evidence base reviewed by NICE along with headline recommendations. Quickly find previous guidance with simple search engine, review statistical summary of approval rates and factors that affect them, print a report containing primary headline guidance for each TA and product, and more.
Include the entire text of ICD-9-CM by year, up to 2007
Incidence and Prevalence Database (IPD)
4,500 diseases and procedures, monthly updates, hard data (original sources) for incidence, prevalence, mortality, morbidity, comorbidities and many other health issues. From Timely Data Resources, Inc. (TDR).
India(n) health statistics
Provides vital event, demographic, social, and economic statistics on American Indians and Alaska Natives living in IHS service areas, as well as patient care and morbidity information for those who use IHS services.
Integrated Research Network from HealthCore
Multidimensional platform which is structured to combine aspects of traditional retrospective and prospective study designs with data obtained from physicians’ offices, diagnostic laboratories and additional administrative data sets in the pursuit of “real world solutions” to clinical research and health outcomes research studies. Clinical studies span the full range of methodology from simple surveys, to registries, to complex phase 2-4 pharmacologic studies.
International Drug Price Atlas
Love this site! Click on the map for where you want a price for a drug – worldwide
ISPOR Managed Care Outcomes Research Digest
Database of abstracts and citations for outcomes research papers on managed care services. This database can be searched by the type of managed care service provided (disease management, drug benefit design, drug formulary, drug utilization review, home infusion therapy, patient education, pharmaceutical services, provider practice management), by the outcomes assessed (clinical, economic, quality of life, and compliance/persistence, or by key word such as author. This database was developed by the ISPOR Managed Care Research Digest Working Group of the ISPOR Managed Care Special Interest Group.
Managed Care Digest Series (from Sanofi Aventis)
Provides detailed statistical information for several key health care markets.
Managed Care Information Center
Clearinghouse for healthcare executives’ managed care information needs by publishing newsletters, advisories, jobs, guides, manuals, special reports and books.
Claims and encounters database representing Americans age 65 and under with employer-sponsored insurance. Patients may be followed over time, across health plans, and across payers (private to Medicare). A subset of patients may be linked to productivity data and laboratory test results.
MarketScan Medicare Supplemental & COB Database; Medicaid database; Hospital Drug Database
Claims and encounters database representing Americans with Medicare and supplemental (MediGap) insurance. Patients may be followed over time, across health plans, and across payers (private to Medicare supplemental). A subset of patients may be linked to laboratory test results. Medicaid: Claims and encounters database representing Medicaid beneficiaries from select states (a more robust database is accessible through Medstat researchers). The population includes all eligibility types, Medicare dual eligibles, and Medicare managed care members. Patients may be followed longitudinally. The MarketScan Hospital Drug Database, derived primarily from hospital billing systems from over 550 hospitals, provides the most detailed and comprehensive data available for understanding hospital care, including drug utilization in the inpatient setting.
Said to revolutionize healthcare reimbursement research. Includes online healthcare economics access point and repository that includes drug preferences and reimbursement rates as determined by federal and state governments.
Medical Cost Reference Guide from BCBS
The Blue Cross and Blue Shield Association fourth annual Medical Cost Reference Guide: Facts and Trends to Support Knowledge-Driven Solutions. The guide provides information on trends in the healthcare industry from nationally recognized data sources.
Medical Episode Grouper (MEG) uses risk-adjusted, disease-based methodology to allow users to group patients by clinically defined levels of severity and compare physicians while improving the overall quality of care. From Medstat
Medical Expenditure Panel Survey (MEPS)
Download the data and the questionnaire! Nationally representative survey of health care use, expenditures, sources of payment, and insurance coverage for the U.S. civilian noninstitutionalized population, as well as a national survey of nursing homes and their residents. AHRQ survey is designed to yield comprehensive data that estimate the level and distribution of health care use and expenditures, monitor the dynamics of the health care delivery and insurance systems, and assess health care policy implications.
Medical Resource Reviews Database
This database contains reviews of electronic medical information resources available by any of the following means: browsable WWW sites, or downloadable datasets and software, or on CD-ROMS. References index is periodically computed for each site as the number of references from other sites. The resource types covered are: reference, learning materials, simulation. The areas covered are: Anatomy, Physiology, Internal Medicine, Physical Therapy, Exercise Therapy, Pharmacology, Dermatology, Dentistry, Acupuncture, Nursing, Gastroenterology, Surgery, Obstetrics/Gynecology, Urology, Pulmonology, Cardiology, Ophthalmology, Prevention, Naturopathy, Sports Medicine, Radiology, Lab, Psychology, Neurology, Psychiatry, Pediatrics, Infectious Diseases, Primary Care, Endocrinology.
Clinical information business of Cardinal Health. Using laboratory results data coupled with data from billing systems, both of which are available electronically in most hospitals, achieves much greater accuracy in assessing quality and outcomes. It also provides information about the risk adjusted outcomes in a form that is readily comparable across hospitals.
MedMining – An EMR Data business serving pharmacoeconomics and outcomes research groups
MedMining, a Geisinger Health System business, offers custom, de-identified, EMR data extracts that represent the continuum of care provided at Geisinger. Geisinger, an integrated health system includes a 700+ multi-specialty physician group practice, 3 hospitals, 40 ambulatory clinics, a clinical reference laboratory, a non-exclusive health plan, and three dedicated research centers. Data, which have been systematically and electronically captured at Geisinger over the past 11+ years, reflect both inpatient and outpatient settings, detailed lab results, vital signs, medication orders, procedures, diagnoses, lifestyle data including smoking and employment status, and detailed actual costs at the encounter, hospital, physician, procedure, and medication level. Examples include tumor size, grade, stage, treatment and status; pulmonary data including spirometry/pulmonary function test results; osteoporosis data including BMD and T-scores; epilepsy data such as detailed EEG findings; and GI data such as endoscopy results based on commonly accepted severity scales.
MedPages Health Care Directory – South Africa
Contact information of South African health care providers and organisations
From Medicare: MEDPAR files contain information for 100% of Medicare beneficiaries using hospital inpatient services. Data is provided by state and then by DRG for all short stay and inpatient hospitals for fiscal years 2000-2003. The following fields are furnished: total charges, covered charges, Medicare reimbursement, total days, number of discharges and average total days. Data for PPS exempt hospitals and units has been grouped into DRGs for inclusion in these tables.
Addresses revenue cycle challenges across a facility’s functional areas and provides a reimbursement calculator, denial event triggering technology, alert systems to monitor patient accounts, and managed care contract modeling capabilities.
Delivers timely, efficient, and cost-effective reporting to JCAHO, CMS, and other data aggregators.
Medstat Modeler assists customers in making accurate, efficient decisions by quantifying the cost impact of proposed plan design changes, including co-pay, premiums, covered services, and benefit limits on costs to the organization and enrollees. * Modeler data is populated with information from the market-leading benchmarking database, Medstat MarketScan® * Provides an intuitive Excel-based interface and generates presentation-ready reports * Helps customers improve their capabilities to forecast expenses and project costs to compare budgets in determining variances * Can identify cost impacts of multiple scenarios in minutes, and run multiple design changes simultaneously
This will take you directly to the data you want.
MEPSnet: Interactive statistical tool
Developed to provide immediate access to data from the Medical Expenditure Panel Survey (MEPS) in a nonprogramming environment. Available online, MEPSnet is quick and easy to use, allowing even novice users the ability to generate national estimates in a few seconds.
Mortality Data from National Vital Statistics Section
Causes of death by year, region from NCHS
National Ambulatory Medical Care Survey
Data reports by year
National Center for Health Statistics
(NCHS) in the Centers for Disease Control and Prevention (CDC) is the principal agency that produces general-purpose health data. NCHS is responsible for the collection, maintenance, analysis, and dissemination of statistics on the nature and extent of the health, illness, and disability of the U.S. population; the impact of illness and disability on the economy; the effects of environmental, social, and other health hazards; health care costs and financing; family formation, growth, and dissolution; and vital events (i.e., births and deaths).
National Directory of Healthcare Payors and Providers (for YOUR state)
From Health Resources Online, you get a CD in PDF format with state-specific directories for National Directory of Managed Care Organiations, National Directory of Health Systems, Hospitals and Their Affiliates, National Directory of Physician Organizations. You can buy for just one state. Cost is $285/state.
National Guideline Clearinghouse (NGC)
A comprehensive database of evidence-based clinical practice guidelines and related documents produced by the Agency for HealthCare Research and Quality(AHRQ), in partnership with the American Medical Association (AMA) and the American Association of Health Plans (AAHP).
National Guideline Clearinghouse™ (NGC)
A public resource from AHRQ and HHS for evidence-based clinical practice guidelines. They have a “What’s New this Week” that is very useful!
National Quality Measures Clearinghouse™ (NQMC)
NQMC is a public repository for evidence-based quality measures and measure sets from AHRQ and HHS.
Oncology Electronic Medical Records
From United BioSource Corp. Through a strategic partnership with Varian Medical Systems, UBC has access to real-world oncology patient electronic medical records collected from cancer clinics across the United States. Varian’s Oncology EMR database, VARiS MedOncology™ Patient Manager, includes individual patient records from outpatient cancer clinics across the United States. The database captures routine patient care and treatment administration on each patient without patient identifying information. The data are updated weekly, and include patient demographics, treatment regimens, test results, treatment outcomes, patient side effects, and concomitant illnesses and allergies.
Oncology Index for Managed Care
The Zitter Group’s new Managed Care Oncology Index focuses on both payers and oncology practices, making it the most comprehensive and up-to-date analysis of the major trends underway in the evolving payer market for oncology. This unique study offers pharmaceutical marketers insight into trends in physician reimbursement, product selection, practice profitability, patient access, and how managed care organizations plan to pursue oncology cost-cutting.
Oncology Market Access Europe, Third Edition provides ongoing, timely information to market access, pricing and reimbursement, and marketing and sales professionals so they can successfully operate in the increasingly scrutinized and regulated oncology marketplace in France, Germany, Italy, Spain, and the United Kingdom. Country-specific modules provide a country overview and description of the healthcare system followed by detailed research and analysis of the oncology sales environment. From MattsonJack DaVinci.
Oncology Marketing Strategies U.S., Sixth Edition provides leading-edge research and analysis on critical reimbursement, pricing, and competitive issues affecting the cancer drug market in the United States. This annual subscription includes direct access to our cancer marketing analytics team as well as ongoing live briefings covering the most pressing issues for manufacturers of oncology drugs. From MattsonJack DaVinci.
Patient Outcomes Profiles (POP) Database
Physician Office Profiles (POP), tracks physician office activity for the top diagnoses. Patient utilization information can be accessed conveniently by keyword or by ICD code. Each record includes discharge data, patient characteristics, visit characteristics, payment source, top ten medications prescribed, diagnostic/screening services provided, procedures prescribed, disposition, and more. From TDR.
Medstat Patient Safety Expert® offers an end-to-end solution that maximizes the power of a patient safety program comprising an easy-to-use event recorder, workflow and reporting capabilities, and root cause analysis functionality.
Online business intelligence tools combined with federal and statewide all payer data sets.
Pediatric Economic Database Evaluation
Paediatric Economic Database Evaluation (PEDE) Project was conceived as part of a research program in paediatric health economic methods.In Phase 1, a comprehensive database of over 750 paediatric economic evaluations published over a 20-year period was created. Phase 2 examined key trends in publication. With this database available, an important objective was to evaluate the quality of published paediatric economic evaluations to reveal methodological limitations of existing approaches. In Phase 3, the Paediatric Quality Appraisal Questionnaire (PQAQ), a 57-item paediatric-specific quality appraisal instrument, was developed through a systematic process of item selection, validity and reliability assessment and pre-testing. The PQAQ was used to critically appraise the quality of the paediatric health economic literature in Phase 4.
Performance analysis and reporting tool, combines robust analytics, clinically driven severity adjustment, benchmarking comparatives, and potent reporting to provide insights needed to focus and drive performance improvement efforts.
Pharmaceutical databases online
Drug information resource. Over 75,000 approved drugs and health products. Include generic drugs, prescription drugs, nutritions, supplements, veterinary products, pet meds, cosmetics, drugs active ingredients, pharmaceutical companies, medical catalogs.
Pharmacoeconomic Guidelines Around the World
Great resource from ISPOR. Country-specific guidelines’ key features (32) as well as hyperlinks or full text of the guideline (as copyright permission allows) or publication reference including a map of the country
Pharmacoeconomic Guidelines Around the World Comparative Table
From ISPOR. “Pharmacoeconomic Guidelines Around the World” currently represents 23 countries and 28 guidelines, which includes 21 PE guidelines, 6 submission guidelines for formulary listing and 1 for journal publication. For these guidelines that were published in the language of the country (Belgium, France, German), the information was abstracted from a published article of Hjelmgren et al. in VALUE IN HEALTH 2001; 4(3) 225-250. The PE guidelines are government regulatory documents, publications, or suggested guidances or best practices for conducting PE or outcomes research and use of this information in health care decisions and reimbursement decisions.
This knowledge packed resource, contains pipeline, financial, analytics, competitor, and partnering information on up to 10,000 biomedical companies worldwide.
Patient-based and disease-specific market model,intuitive and easy to update, maintain or refine on an ongoing basis and can be used on a national, regional or international level. It accommodates up to 52 ountries, with country-specific data gathering possibilities, allowing free inputs for data gaps. Impacts of any market update and any epidemiologic, treatment or label changes are immediately accounted for.
PHARMO Institute for Drug Outcomes Research
Independent scientific research organisation dedicated to the study of drug use and outcomes. The PHARMO Institute has direct access to large and high quality pharmacoepidemiological databases linking drug, patient level and pharmacy data and is staffed with academic trained specialists in epidemiology, pharmacotherapy, medicine and informatics.
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Presentation: ISPOR Risk Management SIG Forum: Risk Benefit Management
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Prices and Wages from Bureau of Labor Services
Wages by area and occupation
Patient-Reported Outcomes Measurement Information System (PROMIS) initiative stablishes a collaborative relationship between NIH and individual research teams through a cooperative agreement (U01) mechanism. The broad objectives of the PROMIS network are to: * Develop and test a large bank of items measuring patient-reported outcomes * Create a computerized adaptive testing system that allows for efficient, psychometrically robust assessment of patient-reported outcomes in clinical research involving a wide range of chronic diseases * Create a publicly available system that can be added to and modified periodically and that allows clinical researchers to access a common repository of items and computerized adaptive tests. The network will collaborate on the collection of self-reported data from diverse populations of individuals with a variety of chronic diseases, using agreed-upon methods, modes, and questionnaires.
QualityTools is an AHRQ-sponsored compilation of practical tools for assessing, measuring, promoting, and improving the quality of health care. Its purpose is to give health plans, providers, purchasers, consumers, and policymakers easy access to a variety of resources they can use to improve the delivery of care, inform decisions, and educate people about their health care needs.
Saint Louis University Center for Outcomes Research Database
Administrative claims from a large private payer health plan housed in a University setting. We are in the process of linking to the registry data for transplant recipients and donors from the Organ Procurement Transplant Network. Our areas of expertise are organ transplantation, asthma, dementia, chronic kidney disease and hepatology. Contact Steven Takemoto PhD at (314) 977-9458 or takemoto@slu.edu
Search Tool on Diseases, Disorders and Related Topics
Allows MeSH searching of MANY diseases.
Surveillance Epidemiology and End Results Program of the National Cancer Institute (NCI) is an authoritative source of information on cancer incidence and survival in the United States. SEER currently collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 26 percent of the US population.
SERMO: Online Physician Community
Physicians around the nation exchange the latest medical insights with each other and improve patient outcomes – 24/7. Used for epidemiology, patient outcomes, surveys, etc.
Solucient (Now part of Thomson Reuters)
Information products company serving the healthcare industry. Solucient provides comparative measurements of cost, quality, and market performance. Maintains the nation’s largest healthcare database, comprised of more than 26 million discharges per year from 2,900 hospitals – representing 77.5 percent of all discharges.
Statistical Resources on the Web
University of Michigan Library – A statistical portal. Links to health stats (example, Deaths; disability; Health Care; Health Insurance; HMOs; International Life Tables; Prescription Drugs; Social Security Death Index; Surgery; transplants; Vital Statistics, etc.) Demographics: population, race, ethnicity, etc.
SDI is the leading provider of real-time localized illness tracking and modeling data to the pharmaceutical and healthcare industries. Conducts patient-level data analyses, patient education, treatment and wellness programs that drive therapeutic compliance and persistence. market research and marketing programs in the area of disease surveillance to pharmaceutical, consumer products companies and retailers in the U.S., Canada, Mexico, UK, Europe, and Australia. We have 17 years of experience in respiratory illness tracking and 11 years of experience in influenza-specific tracking.
The Dartmouth Atlas of Health Care
Provides data on regional costs and spending for healthcare. Website provides access to all Atlas reports and publications, as well as interactive tools to allow visitors to view specific regions and perform their own comparisons and analyses.
The Health Improvement Network (THIN)
The Health Improvement Network (THIN) is a collaboration between CSD EPIC and In Practice Systems (InPS), who supply the widely-used Vision general practice computer system, to provide access to anonymised patient medical records in the UK.
The Managed Care Injectables Index
From The Zitter Group, published twice a year. This link takes you to Zitter’s website to gain more info on the syndicated bi-annual report.
Tufts Medical Center Cost-Effectiveness Analysis (CEA) Registry
The CEA Registry is a unique database containing detailed information on over 1,400 cost-utility analyses published through 2006, with health effects measured in QALYs. The objectives are to help decision-makers identify society’s best opportunities for targeting resources to improve health, to assist policymakers in healthcare resource allocation decisions, and to move the field towards the use of standard methodologies. To date, the Registry has been the source of data for over 30 peer-reviewed articles and has been used or cited in analyses by the EPA, FDA, IOM, and the Medicare Payment Assessment Commission. The published articles summarized in the Registry undergo a formalized review protocol.
Downloadable files on demographics, maps, etc.
WHO CHOICE (International CEA)
WHO-CHOICE reports the costs and effects of a wide range of health interventions in the 14 epidemiological sub-regions (world divisions made based on geographical location and epidemiological profiles). The results of these cost-effectiveness analysis are assembled in regional databases, which policy makers can adapt to their specific country setting.
This is some valuable information, I just wrapped up my paper for class and wish i would had found this article sooner. You may have just made me a regular 🙂
so many participating parties there.it must have been a solid report after all those contributing their time for the same cause.there are many rehab authorities too…bookmarking it now,,too late here to go through this